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It's About Time There Was Some Support!

19.05.2013

Total Members : 1143
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Jenny (Jenny), Adrenal Bio: Jenny is from San Clemente, California. She is having adrenal surgery on June 11, 2013. 4 hours ago
Classifying hypertension: The vast majority of patients have essential or primary hypertension, while only about 5-10% of patients… 5 hours ago
Pulling Myself up by my Frayed and Worn Out Bootstraps: A blog post by Autumn...We will be wounded. Scars will remain. But, it is the way that we cope with the… 2 days ago
Texas Medical Center Announces Brain, Spine And Pituitary Tumor Center: The Texas Medical Center announced that a brain and pituitary tumor treatment center will be established… 2 days ago
Comment added to SoVeryTired, Undiagnosed Bio: ...Years ago I had steroids injected in my neck due to a severe burn due to a scarf around my neck getting… 3 days ago

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04/24/2012

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" For my friends who fight and fight to treat their rare disease, and then end up with this rare disease as the solution. Thank you Mary O for establishing our wonderful network! :) "

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We have a new Donation Tracker on the message boards so that people can easily see how the donations are going and add a one-time donation from that "app". There is also the option to donate anonym [ ... ]

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Classifying hypertension: HYPERTENSION is classified into two categories according to its cause: essential and secondary.The vast… 2 hours ago
The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus: Friday, May 17 at 8PM eastern is the deadline for this. We want to have Caucus Members from all… 3 days ago
Hyperthyroidism due to thyroid stimulating hormone secretion after surgery for Cushing's syndrome: A novel cause of the syndrome of inappropriate secretion of thyroid stimulating hormone: Daisuke Tamada, MD1, Toshiharu Onodera, MD1, Tetsuhiro Kitamura, MD, PhD1, Yuichi Yamamoto,… 5 days ago
Ask your Member of Congress to join the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to… 1 week ago

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Classifying hypertension: HYPERTENSION is classified into two categories according to its cause: essential and secondary.The vast… 2 hours ago
The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus: Friday, May 17 at 8PM eastern is the deadline for this. We want to have Caucus Members from all… 3 days ago
Hyperthyroidism due to thyroid stimulating hormone secretion after surgery for Cushing's syndrome: A novel cause of the syndrome of inappropriate secretion of thyroid stimulating hormone: Daisuke Tamada, MD1, Toshiharu Onodera, MD1, Tetsuhiro Kitamura, MD, PhD1, Yuichi Yamamoto,… 5 days ago
Ask your Member of Congress to join the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to… 1 week ago
MR Brain Spectroscopy Detects Damage In The Hippocampus Of Patients Exposed To Excess Cortisol: New research shows that patients who are "biochemically cured" of Cushing's syndrome have levels of brain… 1 week ago

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