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24.05.2013

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4 Comments added to Jenny (Jenny), Adrenal Bio: Jenny….I had a very similar story to yours, minus the broken hip issues. I was 37 and thought my weight… 19 hours ago
Comment added to Catherine J (Catherine Jones), Pituitary Bio: Wow! Yours is one of the “phew” mine wasn’t nearly so rough stories out there... 3 days ago
Hypercortisolism Is Associated With Increased Coronary Arterial Atherosclerosis: The study aims to determine whether Cushing's syndrome (CS) patients have increased coronary atherosclerosis.… 3 days ago
Jenny (Jenny), Adrenal Bio: Jenny is from San Clemente, California. She is having adrenal surgery on June 11, 2013. 5 days ago
Classifying hypertension: The vast majority of patients have essential or primary hypertension, while only about 5-10% of patients… 5 days ago

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Cushing's Help and Support

Nov

2011

CushieWiki

The CushieWiki could use YOUR input. Please help us with this body of Cushing's knowledge: http://www.CushieWiki.com

Contributors can add and edit information to be sure that we have the most current knowledge available.

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We have been getting spammers lately, so changes have had to be made. Anonymous editing is no longer possible. Even signing up for an account on the CushieWiki isn't enough to keep the spam folks at bay, so... if you want to post/edit/create, you'll need to request an account.

To do so, send a PM to MaryO through the message boards, send a note through the Contact Us page or send a message through FaceBook.

I am sorry for all the annoyances that these spam folks make us go through.

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Last Updated ( Wednesday, 02 November 2011 06:31 )

Jun

2011

Do You Blog About Your Health?

Tufts University Medical School: Patient Blogging Survey

INFORMED CONSENT FOR PARTICIPATION

Thank you for taking part in a Tufts University School of Medicine graduate research project to examine patient blogging.

Purpose of the Study: The purpose of this study is to examine the use of patient blogs.

What will be done: You will complete a survey, which will take 10-15 minutes to complete. The survey includes questions about your blogging history. We also will ask for some demographic information (e.g., age, marital status,education level) so that we can accurately describe the general traits of survey participants.

Confidentiality: Your responses will be kept completely confidential. We will NOT know your IP address when you respond to the survey. We will ask you to include an e-mail address when you complete the survey so that we can enter you in the drawing for the gift certificate. However, your e-mail address will not be stored with data from your survey. You will be assigned a participant number, and only that number will appear with your survey responses.

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Read These?

Overlapping conditions and clinical features of Cushing’s syndrome

From http://www.cushings-help.com/downloads/Cushings_Guidelines.pdf

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Hypercortisolism Is Associated With Increased Coronary Arterial Atherosclerosis: Hypercortisolism Is Associated With Increased Coronary Arterial Atherosclerosis: Analysis of Noninvasive… 2 days ago
Classifying hypertension: HYPERTENSION is classified into two categories according to its cause: essential and secondary.The vast… 4 days ago
The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus: Friday, May 17 at 8PM eastern is the deadline for this. We want to have Caucus Members from all… 1 week ago
Hyperthyroidism due to thyroid stimulating hormone secretion after surgery for Cushing's syndrome: A novel cause of the syndrome of inappropriate secretion of thyroid stimulating hormone: Daisuke Tamada, MD1, Toshiharu Onodera, MD1, Tetsuhiro Kitamura, MD, PhD1, Yuichi Yamamoto,… 1 week ago

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Hypercortisolism Is Associated With Increased Coronary Arterial Atherosclerosis: Hypercortisolism Is Associated With Increased Coronary Arterial Atherosclerosis: Analysis of Noninvasive… 2 days ago
Classifying hypertension: HYPERTENSION is classified into two categories according to its cause: essential and secondary.The vast… 4 days ago
The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus: Friday, May 17 at 8PM eastern is the deadline for this. We want to have Caucus Members from all… 1 week ago
Hyperthyroidism due to thyroid stimulating hormone secretion after surgery for Cushing's syndrome: A novel cause of the syndrome of inappropriate secretion of thyroid stimulating hormone: Daisuke Tamada, MD1, Toshiharu Onodera, MD1, Tetsuhiro Kitamura, MD, PhD1, Yuichi Yamamoto,… 1 week ago
Ask your Member of Congress to join the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to… 2 weeks ago

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