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This is the latest in the Cushing's Help family of websites.  Be sure to check them all out! It all started with  www.cushings-help.com in July of 2000...

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Cushing's Help and Support
15
Mar
2013
Welcome to Cushie.info! PDF Print E-mail

 

Welcome to the latest Cushing's site, Guest!

July 21, 2012 was our 12th birthday!

Thanks!

 

Please be sure to register for this site to take advantage of all its features!

Due to a large number of would-be spammers and hackers,  a larger measure of security has been added to the registration process.  A passphrase is now required to register for this site.  You can get this here.  Sorry for any inconvenience!

Please note that new members may be approved by an administrator before continuing.

Last Updated ( Friday, 15 March 2013 08:57 )
 
21
May
2013
Cushing's News PDF Print E-mail

Something new of interest to Cushies most every day.

Cushing's Help turned 12 years old on July 21, 2012.  Amazing!

Thanks!

 

May, 2013:

 

News:


On the Websites:


Interviews and Podcasts:


New Bios:

Please note that there is a current backlog of several weeks for submitted bios to be added to the website. We apologize for the wait, and thank you for your patience.


Newest Helpful Doctors:


Media:


Clinical Trials:

Last Updated ( Tuesday, 21 May 2013 08:12 )
 
23
Nov
2012
What's New Here? PDF Print E-mail

NEW! We're on  Follow Us on Pinterest

NEW! Cushie Readers book club on goodreads.com Please join us!

Occasional Newsletters have returned: Members of this site will automatically receive these occasional newsletters. Of course, you may opt-out at any time. Thank you for your interest.  Non-members may subscribe through the Newsletter Subscription module on the left side of this page.

NEW! Google+ page for Cushings

NEW! We have signed up for Pathology Atlas as a way of further spreading the word

NEW! Google +1 button added to every page here. Find it along the bottom of  of each page



Use the +1 button to publicly show what you like, agree with, or recommend on the web. The +1 button can appear in a variety of places, both on Google and on sites across the web. For example, you might see a +1 button for a Google search result, Google ad, or next to an article you're reading on your favorite news site. Your +1’s and your social connections also help improve the content you see in Google Search.

Note: If you click a second time, it will remove your vote.

More about +1 from YouTube:

 

NEW Spreadsheet: Where do your donations to Cushings Help go? Updated 3/4/12

NEW! The Cushie Info Blog is now configured for mobile use http://www.cushie.info/blog/

• There is a new countdown timer near the calendar to let you know how long it will be to the next live interview.

Still being added.  A FAQ (Frequently Asked Questions).  Directions are in each category for adding your own question. IMPORTANT: The information and material posted on this Web site is intended as general reference information only. Specific facts and circumstances may alter the concepts and applications of materials and information described herein. The information provided is not a substitute for professional advice and should not be relied upon in the absence of such professional advice specific to whatever facts and circumstances are presented in any given situation.

Redone: Thanks to a suggestion by Patrick, this site now had a "template chooser".  It now automatically detects your device and chooses the alternate template for you.  If you are on a cellphone, this site should have already loaded a special template optimized for PDAs and mobile phones.

•"Read these?" On the right side-bar. Random articles you may have missed.

Donation Tracker on the message boards so that people can easily see how the donations are going and add a one-time donation from that "app".

New Groups. Whenever there's a new service, or site, I like to try it out to reach as many people with Cushing's as possible.  I know that all Cushies aren't on Facebook, or Twitter or even on the Cushing's Help message boards. So, I'm giving these a whirl :)
Cushing's Help group on Posterous
Open Cushing's Help Group on LinkedIn at Cushing's Help Organization
Cushing's group on empowHER

• Success Stories! These will be culled from the bios and posts on the message boards. Personal Information will not be shared without member permission.

• A section of "Male-Only" bios.  2007 through 2010 have been done so far.  Older pre-2007 adrenal and ectopic bios have been added. Names A through D of the older pituitary bios have been added now.

• Live Talk / Video Chat at the bottom right of each page in the stationary toolbar. 
Please note that you need to obtain a password to enter and a second to broadcast video. Please contact MaryO on Facebook or the message boards for this password.

Each article on this site allows for reader comments and suggestions.

• The Cushing's Boards are finished with a major upgrade and facelift.   The forums are optimized for viewing on cellphones.

Daily News Summary at Cushing's Daily News

Medical Centers. These are centers which specialize in Cushing's, pituitary or adrenal patients.  If you, as a patient, have one that you'd like to have added, please send any info you may have to Mary O'Connor (MaryO).  Thank you!

Cushie Toolbar: Be the first to know! The Cushie Toolbar features a Google search box, the 911 Adrenal Crisis! page, the Cushie Reads book recommendations page, Cushie Calendar, all the bios, arranged by diagnosis type or date, add (or update) your bio, our locations around the world, the message boards and chatroom, Helpful Doctors list, add (or update) your Helpful Doctor, support page, scrolling message area for Cushing’s news, Cushing’s blogs, NIH Clinical trials for Cushing’s, pituitary and adrenal, the Cushings Help Organization cause on Facebook, Staticnrg and Cushings on Twitter, new CushieWiki and listen to the Cushing’s podcasts right from this toolbar.

On Twitter? Our hashtag is #cushings.
We have started a Cushing's group there, too at http://twittgroups.com/group/cushings. There is also a Twitter "twibe" at http://twibes.com/cushings.

Follow us on Twitter

On Facebook?

The Cushing's Help Cause currently has 1,770 members.

The Cushing's Help and Support Group has been upgraded to the new groups format, which makes it easier for members to connect and share.  There are 623 members.

The very active Cushings Help Organization, Inc has 706 Fans.

A site translation feature has been added to all pages.  On the right side of every page there is a box containing flag icons.  Click the flag icon to translate the page into another language.

Last Updated ( Friday, 23 November 2012 10:07 )
 
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" You have touched my Life in so many amazing ways Mary-O, if not for you the entire journey would be alone and on the wrong side of the street. Thank you so much for working as hard as you do, with such passion and love for others. You inspire me on my darkest days and make me smile on the good ones~ Thank You Mary -O for being exactly who you needed to be to change the face of Cushing's Awareness. Your life is a beautiful, smooth rock thrown into the pond of need, rippling it's knowledge through us all. "
Lisa A

Your Thoughts

What is your Cushing's Type?
 

Read These?

Torri, adrenal bio

My mom Torri, had her adrenal gland removed last spring and this weekend she will be down to 1mg of the steroid. It has been a very rough two or so years, diagnosing to dealing with all of the terr [ ... ]


Krissy, undiagnosed bio

30 year old from Portland, Oregon who has high levels of cortisol and going to see endo on Dec 1. Believe this is Cushings.  We will see.


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