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About us
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Thursday, 03 February 2011 12:53 |
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I “acquired” this from another site and changed the names to protect the innocent…
As you know many of us Cushies have had or have an addiction to Googling.
I suggest anyone who feels compelled to google symptoms go to the message boards to ask for support instead of typing these or any words such as “buffalo hump” in the google search engine. When this is done all roads lead to one thing…… You Eat Too Much!; You’re Depressed!
So, anyone who is about to hit enter on their computer which feeds their Google addiction…. go to the message boards to ask for help. One of the other Cushies who have achieved “Google sobriety” will help you down of the ledge.
1. Admit for now that you are powerless over your urge to Google.
2. Believe that a power greater than you (that would be other Cushies) can help you off that ledge
3. Decide to turn your “fingers” over to a higher power as you understand it.
4. Make a searching and fearless inventory of what you hope to gain from googling.
5. Admit to yourself and to another human being the exact nature of your addiction to Google.
6. Allow other Cushies to assist you when you are so scared you are thinking about googling symptoms.
7. Humbly ask for Xanax, Klonopin or Cortef in order to calm yourself from googling symptoms
8. Make a list of all the diseases you think you have or have had and survived and have a burning ceremony and then…. take a nap.
9. Cite all Google sites you have searched diseases on and delete them from your favorites/history.
10. When you start thinking….STOP….. do something else, like take an inventory of your test results.
11. Seek through prayer and/or meditation to improve your thought process. Do not travel to “OMG’ or “What if” land (this is a serious suggestion).
12. Having had a spiritual awakening as a result of these steps, carry this message to all your Cushie friends and anyone else you know who has a Google addiction.
13. Now I know there isn’t a 13th step, however, if you have noticed you are drinking too much wine or taking too many pills, please remember there are other 12 step programs for that, lol…
So, what about it – what are *your* suggestions to cure Google Addiction?
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Cushie Bloggers (Updated 10/8/2012) |
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Saturday, 04 October 2008 13:16 |
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Cushie Bloggers
 The word "cushie" without quotes is the passcode to register for this site.
Cushie Bloggers are a group of Cushing's patients, family members and friends, who are members of the Cushing's Help and Support Message Boards.
We don't always write about Cushing's because we have varied and interesting lives but the syndrome is always lurking behind the scenes, somewhere.
If you think that you might qualify as a Cushie Blogger but are not a member of the message boards for whatever reason, please email me with your blog information and we'll check it out to see if it can be included here.
New Cushing's blogs added to the blogroll at http://cushie-blogger.blogspot.com/
Our Newest Blogger! Missaf: Brain Tumors Can Make You Fat
Since April 8th is the day we Cushing's patients call "Cushing's Awareness Day," I'd like to do my part by blogging as much as possible throughout the month of April on this blog.
Alicia: Hear hoofbeats, think Zebras
This is a blog, loosely based, on my experiences with Cushing's Disease; illness, recovery, and what lies between. It is more of a place where I can ramble on about what is on my mind, in the hopes of clearing my mind enough that I might sleep tonight.
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Last Updated ( Monday, 08 October 2012 10:44 )
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Cushie warriors: men, women & children who battle Cushing’s numerous times in hopes of winning the war |
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Saturday, 09 April 2011 09:10 |
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MelissaTX posted this on the message boards in honor of Cushing's Awareness Day, April 8:
Many of you only know one person with Cushing’s. It is difficult to understand or keep up with ‘your person’ as s/he seeks treatment. You have probably never known someone with Cushing’s before, right? You do know, however, that ‘your person’ talks about Cushing’s a lot or is pretty darned passionate about their Cushie friends. We lean on and help others even as we struggle to find our way through complicated testing, surgery (-ies), and hopefully, cures.
You see, for us, we know MANY people with Cushing’s through cushings-help.com website. Cushing’s is a house guest who ruins our lives and won’t leave us alone. We Cushies all find it incredibly frustrating to have hit the many walls. We see it every day: patients insulted, dismissed, and defeated. When it happens to us, we are often rendered speechless. When we see our fellow Cushies meet the same poor medical treatment, we become incensed. Ultimately, we know our bodies best, and we are found to be correct. We know when we have a disease as devastating as Cushing’s.
For Cushing’s Awareness Day, we compiled this list of Cushing’s patients from all over the world who are fighting Cushing’s and seek treatment and a cure through multiple surgical procedures and even radiation. A glossary of terms is located at the bottom of the list.
Every patient wants to be understood, supported, and cared for. We want you to know that we are one of many who suffer from this ‘rare’ albeit rarely diagnosed disease.
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Last Updated ( Thursday, 27 September 2012 20:57 )
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Cushing's Awareness Day - April 8, 2013 |
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Friday, 08 April 2011 00:00 |
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Today, April 8th, is Cushing's Awareness Day. Please wear your Cushing's ribbons, t-shirts, awareness bracelets or Cushing's colors (blue and yellow) and hand out Robin's wonderful Awareness Cards to get a discussion going with anyone who will listen.
And don't just raise awareness on April 8. Any day is a good day to raise awareness.
What Can *YOU* Do to help?
Check out these ideas
1) status of the Cushing's Awareness Day legislation... who has signed, who do we need to get? I have contacts to the US congressfolks from Houston, and I wanted to get them to sign if they have not. Can we get someone to testify before Congress? Can we get any federal funding? Can we rally with other rare disease groups to get in front of that mic on CSPAN?
2) can we do a fund drive for the month prior to April 8th in order to fund all of our projects and this site? can we keep track of how much each board member raises with little thermometers that show how much is collected, in order to get people excited about how much money is being generated?
3) can those who have had surgery in the past year right up there story to be published on April 8th for awareness day? I hope that planning this far in advance will allow us to get more articles published. Perhaps those who already had surgery can ask the paper to re-run their story with an update and reminder about awareness day.
4) can someone can write a press release to the news channels to get coverage for awareness day
5) we get someone to create a very nice postcard that we all can print from our home at our expense on card stock. Then we each pay for the postage to send the cards to all of our friends and families. Perhaps we can ask our family and friends to donate money to us that we can then donate to this board...
6) I need a Cushing's bumper sticker! I know there are some for sale on the store site, but I was wondering if we can get some heads on this project to get something really catchy. I would put one on my card if we could get a really cool design going... any graphic artists wanna take this up?
7) I love the radio blog shows. I think they are so great. Perhaps we can add that icon to all of our Myspace, Facebook, and personal websites. Do we have an icon that we can post to get people to this site?
8) Have people set up care pages to keep friends and family informed about all the tests, doctors appts and then following us through surgery and post op. I have over 65 people subscribing to my care page, and I am confident that those 65 people didn't know anything about Cushing's until I told them about it. If we inform little circles of 50 all around the US and world, then we will be doing a great job increasing awareness. It is free, and I love mine. I control the tone of the site, and no one talks back to me there!
9). What can we do in the medical community? I'd like to see us patients doing more to lead the doctors down the proper path. ----- Do we get a booth at a national endocrinologist conference and pass out information we want them to know, with Cushies staffing the booth? ----- Do we develop a pamphlet specifically for doctors? ----- Do we start a partnership with the national association of endocrinologists (not sure if this really exists, but you know what I mean) and work together to get more research done on Cyclic Cushing's by offering ourselves up as research participants?
10) Perhaps we contact every Women's health magazine on the market and submit some articles in February for consideration of their April magazine.
11) Perhaps we buy the google ads based on key words that appears in email. The links pop up on the right side bar while people read their gmail or other online email. If the person says ponch, fat, or other key words, then the side bar will give a link to this site.
12) We can distribute DVDs of Kate's show and the two mystery diagnosis shows (Sam and Sharmyn) to doctors and endos? To new Cushies? This will take some money for DVDs and postage, but if we focus on raising some money, then we can allocated funds to these worthwhile expenses. Now, I am not sure if we need permission from Mystery Diagnosis or Nat Geo for that, but someone can take this project and get all the details.
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Last Updated ( Wednesday, 10 April 2013 11:09 )
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Cushing's Syndrome Pathophysiology Diagram and Guideline |
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Tuesday, 12 October 2010 12:08 |
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Cushing’s Syndrome (hypercortisolism) is hormonal disorder caused by prolonged exposure of the body’s tissues to high levels of the hormone cortisol which can be from both serum ACTH low (iatrogenic, adrenal neoplasm) and serum ACTH high (pituitary neoplasm, ectopic ACTH).
The pathophysiology diagram of Cushing’s Syndrome can be understood through the above illustration, since the outcome of this cycle is people develop Cushing’s syndrome because their bodies produce too much cortisol.
Complete read about Cushing’s Syndrome Pathophysiology Diagram and Guideline can be seen here (source: endocrine.niddk.nih.gov)
From http://physicianjobster.com/internist/endocrinologist-internist/cushings-syndrome-pathophysiology-diagram-and-guideline/
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Page 1 of 6 |
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" By the way, I viewed your website and found it very thorough with lots of helpful information.
The bios were really moving. Breaks your heart to read how long it has taken some to be correctly diagnosed and helped. "
Mary Lee Vance, MD of the University of Virginia
Read These?
Jane, undiagnosed bio
New here and confused, started with uncontrolled hypothyroidism and now just heard the words cushings whispered after recent blood results, only thing I got told was eosinophil is 10.9.
What should I [ ... ]
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November 2011: Cushing's News
Something new of interest to Cushies most every day. Please note that there is a current backlog of about three weeks for submitted bios to be added to the website.
Week of November 30, 2011:
News [ ... ]
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