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18.05.2013

Total Members : 1139
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Pulling Myself up by my Frayed and Worn Out Bootstraps: A blog post by Autumn...We will be wounded. Scars will remain. But, it is the way that we cope with the… 1 day ago
Texas Medical Center Announces Brain, Spine And Pituitary Tumor Center: The Texas Medical Center announced that a brain and pituitary tumor treatment center will be established… 1 day ago
Comment added to SoVeryTired, Undiagnosed Bio: ...Years ago I had steroids injected in my neck due to a severe burn due to a scarf around my neck getting… 2 days ago
Friday is the last day! Help Grow the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to ask… 2 days ago
Catherine J (Catherine Jones), Pituitary Bio: Catherine J is from Prosser, Washington. She had 3 pituitary surgeries, gamma knife radiation, and… 2 days ago

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p27jojo, PCOS Bio

I am a 37 yr old woman with 3 children. I have a rounded face, horrible stretch marks that are very large, hump on back, fatigue, muscle weakness, loss of concentration, hirsutism (especially face) [ ... ]

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The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus: Friday, May 17 at 8PM eastern is the deadline for this. We want to have Caucus Members from all… 2 days ago
Hyperthyroidism due to thyroid stimulating hormone secretion after surgery for Cushing's syndrome: A novel cause of the syndrome of inappropriate secretion of thyroid stimulating hormone: Daisuke Tamada, MD1, Toshiharu Onodera, MD1, Tetsuhiro Kitamura, MD, PhD1, Yuichi Yamamoto,… 4 days ago
Ask your Member of Congress to join the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to… 1 week ago
MR Brain Spectroscopy Detects Damage In The Hippocampus Of Patients Exposed To Excess Cortisol: New research shows that patients who are "biochemically cured" of Cushing's syndrome have levels of brain… 1 week ago

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The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus: Friday, May 17 at 8PM eastern is the deadline for this. We want to have Caucus Members from all… 2 days ago
Hyperthyroidism due to thyroid stimulating hormone secretion after surgery for Cushing's syndrome: A novel cause of the syndrome of inappropriate secretion of thyroid stimulating hormone: Daisuke Tamada, MD1, Toshiharu Onodera, MD1, Tetsuhiro Kitamura, MD, PhD1, Yuichi Yamamoto,… 4 days ago
Ask your Member of Congress to join the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to… 1 week ago
MR Brain Spectroscopy Detects Damage In The Hippocampus Of Patients Exposed To Excess Cortisol: New research shows that patients who are "biochemically cured" of Cushing's syndrome have levels of brain… 1 week ago
Salk scientists find potential therapeutic target for Cushing's disease: LA JOLLA, CA---Scientists at the Salk Institute for Biological Studies have identified a protein that… 1 week ago

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