I'll do a quickie intro: My name is Shauna, two kids and one husband plus 11 chickens. Dxed Cushing's in 2001, had transphenoidal in 8/01 and had BLA in 2/02. Feeling better than ever, though there's no real normal. I now am able to get up in the morning, go about my day and have minimal problems.
I'm currently injecting dex (dose is roughly .2, I think), take 4 florinef a day plus desmopressin and synthroid. Also salt pills. My bp is 70/40 on a good day, but again - part of the new normal.
I was on the Cushing's boards for a loooong time, but only post occassionally. A lot of the folks on there with me aren't with us anymore, which makes it hard to visit.
Feel free to post my into...I'll get on the boards soon. I visited last month or so, so I guess that's something. The big message is that there IS life after Cushings and a BLA and it's a darned good life. The best part is that because of this stuff we go through, we know we have to appreciate every moment, moments that other people let pass by without notice. For us, we're here to see them and it's all magical - even the not so fun stuff.
Total Members : 1141
Latest Member : pdwanwx535
This Week : 16 Registers
This Month : 29 Registers
" Mary O, I would have died without this site that YOU have so unselfishly made for us.... Thank you from the bottom of my heart for continuing to help me and so many others that so desperately need this outlet and incredible source of info that this site provides for us... YOUR site has made such a difference in my life and my family's life! I am sure YOUR efforts will be rewarded immensely in heaven... I bet God SMILES when he looks down upon YOU... "