Cushing's Info

These "Male Only" bios were suggested by a member of the message boards. This list currently includes only bios from 2007-2010. Older pre-2007 adrenal and ectopic bios have been added.  Names A through D of the older pituitary bios are added now.

Added 5/7/2013:

Anthony G is from Avon Lake, Ohio. He was diagnosed with Cushing's on October 8th, 2012 and had pituitary surgery December 4, 2012.

Adrenal

• Bill (bill) is from El Centro, California. A CT scan found an adrenal mass but he doesn't have any symptoms.
• Bruce has Conn's Syndrome which is being treated successfully with medication
• Bruce L is from Windsor Locks, Connecticut. He hopes that robotic surgery will remove his adrenal tumor leaving most of his adrenal gland so there will be no steroid treatment required.
• Charles had his adrenal glands removed. Ginger tells her dad's bio. His name was Charles Hamilton Hawn the fourth and her oldest brother says he is in the medical books as one the first with this illness from 1962-1967.
• Chris (slpatient) is from Houston, Texas. He had laparascopic adrenal surgery.
• Dave (Dave H) is currently undergoing testing at Stanford endocrinology for possible Cushing's/Pheo.
• Donald is from Hillsborough, New Jersey.   He was misdiagnosed in 1957 and 1960 when it was said that his problem was due to conversion reaction. He had a left adrenalectomy in 1994.
• Duncan was diagnosed July 9, 2003 with tumor on his adrenal gland.
• Frank (franski) was diagnosed with Cushing's 4 years ago but when the Insurance company figured out how much all the testing and treatment was going to cost all of a sudden his doctor at the time said "don't worry all is fine it's not Cushing's after all. you have diabetes and very high blood pressure."
  
• Harley (HBW) has Addison's disease and a pituitary adenoma.
• Harry has had bilateral adrenal tumors for over 17 years.
• Jeff has right adrenal cancer which invaded the inferior vena cava and the liver. He is blind.
• Jill's father had Addison's for over 30 years before he died following triple bypass surgery.
• Joe (Joe) is from Fredonia, New York. he had adrenal gland surgery June 5, 2005. He just recently weaned off cortisone and is currently on disability retirement.
• Korey (korkeeper) was diagnosed with Cushing's Syndrome in his right adrenal gland. His surgery was in May of 2007
• Leann is from Bulger, Pennsylvania. Her son was recently diagnosed with Congenital Adrenal Hyperplasia (CAH). She suspects possible adrenal problems with her oldest daughter (age 19) and herself.
• Lori (larrysdaughter) is from Coeburn, Virginia. Her father has many diagnoses including Hypertensive Urgency, electrolyte imbalance, TIAs and a small CVA, Diastolic Dysfunction, Bradycardia, with trace Tricuspid regurgitation, mild Mitral regurgitation, a small patent foramen ovale in the Interatrial septum, Glaucoma, a hydrocoele, and periodontal disease. He has an 18 x 13 mm left adrenal lesion and high cortisol but is not yet diagnosed with Cushing's.
• Mark (Mark) is from Louisville, Kentucky. He has Addison's Disease and would like to meet others who have this disease.
• Mary's son has adrenal cancer.
• Michael B was diagnosed with Cushing's in late 1979 and had a bilateral adrenalectomy in 1980. He also had pituitary surgery and Nelson's Syndrome.
• Mohammed is from Tasmania,  He is 7 years old and is recuperating after city doctors removed 7-cm tumour from his adrenal gland, which was responsible for his 12-kg weight gain, growth of facial hair.
• Quinton (Quinton) has had three adrenal surgeries
• Peggy's husband had a pituitary tumor removed in May 2012 after a diagnosis of Cushings.  He still has an adrenal tumor that the endocrinologist thinks was fed by the pituitary tumor.
• Raymond was first diagnosed with Cushing's in 1983 and is now Addisonian
• Robert is from Maine. He was recently diagnosed with adrenal Cushing's and has had chronic renal issues for over 20 years.
• Robin's husband has been diagnosed with hyperaldosteronism.  He is on aldosterone blocker but has side affects.
  
• Ross is from Temple City, California. He was diagnosed with a adrenal Cushing's in December 2010 and has had laparascopic surgery.
• Sean is from Pennsylvania. His diagnosis was Bialateral macronodular adrenal hyperplasia with Cushing's Syndrome.
• Sonny is from Melbourne, Florida. He had adrenal surgery over 4 years ago and is still struggling. He will go to the Cleveland Clinic in May 2011.
• Steven (StevenO) is from New Lebanon, Ohio. He had a tumor on his left adrenal gland and HyperBeta Adrenergic Syndrome. He was the subject of a Live Interview in the Cushings Help Voice Chat / Podcast series April 10, 2008
  

  Steven's story in the media

Ectopic

• Brian was diagnosed with Cushing's Disease in July, 2002 after suffering from episodic symptoms for about 2 years
• Damon had Cushing's and found a 8x4x5 cm mass on his left lung
• Daniel (Danny Boy) is from Stuart, Florida. He has an even more rare form of Cushing's with the tumor in his lung.
• Dick had two pituitary surgeries but was told that he still had Cushing's and that there is still a tumor somewhere in his body that cannot be located.
• Dwight (Rocky) is from Rocky Mountain House, Alberta, Canada. He had a BLA in May of 2008 because of ectopic Cushing's disease. His recovery was good with most symptoms decreasing or continuing to improve but he still has no energy, extreme fatigue and depression.
• Keith was diagnosed with Cushing's disease in 2005. At first it was thought to be pituitary but it turned out the tumor was in his lung
• Sean S had a thymus gland that produced ACTH and caused his Cushing's
• Travis is from Morgan City, Louisiana. He had ectopic Cushing's caused by a carcinoind tumor. He also had a pituitary tumor removed.

Pituitary

• Adam is 13 year old boy who was diagnosed with Cushing's Disease
• Allen had pituitary surgery with Dr. Johnny Delashaw in 2003
• Amber's son Hunter is from Walker, Iowa.  Hunter has recently been diagnosed with Cushing's.  His doctors tested him because he hasn't grown in nearly 3 years.  His tumor is putting pressure on his optic nerve although his vision has not yet been affected.  Amber updated his bio after his pituitary surgery.
• Anthony G is from Avon Lake, Ohio. He was diagnosed with Cushing's on October 8th, 2012 and had pituitary surgery December 4, 2012.
• Archie was diagnosed with Cushing's in 1991 after being mis-diagnosed for about 8 years.  He had a failed surgery in 1992
• Art wrote a PDF book about his experiences with Cushing's
• Az is from Malaysia. He is not diagnosed with Cushing's but has many symptoms. He has seen a GP, a Nephrologist and an endo. All tests are inclusive so far except for elevated prolactin.
• Bill had pituitary surgery in January of 1996 at Harborview in Seattle
• Brandon (jediknight36) is from Lewisville, Texas. He was interviewed in the Cushings Help Voice Chat / Podcast series. Listen to Brandon's interview on iTunes or on the podcast page. Brandon has also uploaded videos which are included in his bio.
• Carl had Cushing's for 8 years before diagnosis. He has had surgery.
• Cameron had pituitary surgery May 9, 2003
• Caspar is a 26 year old male former Cushing's patient
• Chris S (suter32) is from Kalamazoo, Michigan. After years of preparation and training to become a Navy SEAL, he recently found out that has a pituitary tumor and Cushing's Disease.
• Daniel M had pituitary surgery October 23, 2002
• Darren is from New York.  He is 42 year old male who was just diagnosed with pituitary Cushing's.
• Darren S had successful surgery to remove a pituitary adenoma in January 2003
• Darryl had pituitary surgery in 1992
• David had a pituitary surgery on March 18th that did not bring him relief. This Tuesday, August 2, he will have a second surgery at a different facility with a different surgeon.  He is 16.
  
• David had pituitary surgery in 2004
• David H had pituitary surgery May 15, 2002 at NIH with Dr. Ed Oldfield
• David W was diagnosed with Acromegaly June, 2003
• Dick had two pituitary surgeries but was told that he still had Cushing's and that there is still a tumor somewhere in his body that cannot be located.
• farmbrewer is from Janesville, California. 15 years ago he was told that he had an adenoma on his pituitary gland. He thinks that explains everything he have been dealing with for the past 20 years.
• Jarryd (Medboy) is from New Zealand.  He is a male student with a pituitary tumor. He had accelerated weight gain since late 2011, despite frequent exercise and heavy dieting.
• Jef's son is 14. His pituitary adenoma was removed at Childrens Hospital of Boston. He had none of the classic symptoms of Cushing's except a lack of growth development.
• Jeff (akflier) is from Palmer, Alaska. He was diagnosed with pituitary Cushing's in July 2008 and had surgery in August 2008.
• Jeff (jeff m) is from Abernant, Alabama. He was diagnosed with a pituitary tumor in Oct of 2005. His endo recently diagnosed him with diabetes, hypogonadism, and now suspects that he may have Cushing's.
• Jon is from Boise, Idaho. His first pituitary surgery was with an inexperienced surgeon. He took Ketokonozole until his second surgery at UC San Francisco June 2nd, 2009.
• justbcuz (LarryN) is from Nevada. He has had multiple medical problems since 1983. In April 2007 he underwent brain surgery to remove a lesion from the left occipital lobe which was found to be benign. He is now checking into his many symptoms which could be Cushing's.
• Kenny (ken2501) is from St. Louis, Missouri. He was diagnosed with Cushing's at the end of his freshman year of high school. He has had two pituitary surgeries and Gamma Knife radiation.
• Kyle is from Williston, North Dakota.  He is in the middle of the diagnosis right with Dr. Theodore Friedman as of 7/15/2011.  His pituitary tumor has been identified at 3 mm, high cortisol.
  
• Laurie P (LollyP) is from Martinez, California. Her son was diagnosed with pituitary Cushing's in 2002, had surgery in May of that same year, and then in July, had additional surgery for hypoparathyroidism.
• LeAnna's 7 year old son has Cushing's.  He has had unsuccessful pituitary surgery and his next options are removal of the pituitary gland, radiation, or removal of the adrenal glands.Martin (Martin Heath) is from Seaside, Oregon. He has had migraines since he was about six years old. He has had pituitary surgery but the symptoms returned post-op.
• Mattie is from Cambridge, Ohio. Her husband has Cushing's. He was diagnosed June 2007, after collapsing and suffering a tramatic brain injury. He now goes to the Cleveland Clinic but they are unable to find his tumor after repeated petrossal sinus samplings.
• Michael B was diagnosed with Cushing's in late 1979 and had a bilateral adrenalectomy in 1980. He also had pituitary surgery and Nelson's Syndrome.
• Nick (Nick R.) is from Danvers, Massachusetts. He had pituitary surgery with Dr. Brooke Swearingen, a neurosurgeon at Massachusetts General Hospital in April, 2007.
• Patrick is from New York, New York.  He is 20 months into recovering from a transphenoidal adenectomy to treat his Cushing’s disease
• Patti's son is from Beachwood, New Jersey. Her 9 year old son was recently diagnosed with Cushing's and is still testing.
• Peggy's husband had a pituitary tumor removed in May 2012 after a diagnosis of Cushings.  He still has an adrenal tumor that the endocrinologist thinks was fed by the pituitary tumor.
• Raymond (rkwan77) is from Rego Park, New York. He is recovering from pituitary surgery in 2005 and is still dependent on meds. He has osteopenia.
• Robert (Robert) is from Portland, Oregon. He had pituitary surgery about 18 months ago and his symptoms are returning. He is not happy about starting testing again.
• Robert (robert dean) is from Memphis, Tennessee.  After having symptoms since 1993, a tumor was found on his pituitary gland in May of 2003. In January of 2006. 2 pituitary tumors were removed but he was not cured.
• Robin (kegansmom) is from Baltimore, Maryland. Her 19 year old son was diagnosed with a mass on his brain on 12/12/08. He had many issues after surgery. He is taking Kepra.
• Steve is from Myrtle Beach, South Carolina. He had transphenoidal surgery on Feb. 7, 2004 at UVa with Dr. Laws. Steve updated his bio in July, 2009 after being in remission for almost 5 years. His doctor is recommending Gamma Knife.
• Suzypar (Mike) is from Langhorne, Pennsylvania. Her husband Mike developed osteoporosis, diabetes, high blood pressure and other problems seemingly over night. He had transphenoidal pituitary surgery June 23, 2008.
• Theresa is from Huntington, West Virginia. Her 7 year old son has been diagnosed with Cushing Syndrome. he will have surgery on June 1, 2008 to remove his pituitary tumor.
• Tim B (tbovs) is from Sault Ste Marie, Canada. He has been struggling with rapid weight gain and fatigue and headaches for the past 8 years or so. A pituitary MRI recently showed a macroadenoma and he will continue testing.
• Travis is from Morgan City, Louisiana. He had ectopic Cushing's caused by a carcinoind tumor. He also had a pituitary tumor removed.

Steroid-Induced Cushing's

• Harley (HBW) is from Sturgis, South Dakota. He has Addison's Disease and a pituitary tumor. He has steroid induced Cushing's.

Undiagnosed

• Barry is from San Francisco, California. He is not diagnosed with Cushing's but was just diagnosed with (ICSR) Idiopathic Central Serous Retinopathy.
• Bob (RDP) is from Portsmouth, Ohio. His diagnosis of "suspected" Cushing's was by a dermatologist.
• Bobby (bobbyb) is from New Orleans, Louisiana. He is not yet diagnosed with Cushing's but has many symptoms. When he was 15 he was diagnosed with Chron's Disease.
• Cathy (cathymikex2) is from Cazenovia, New York. Doctors have told her that her seventeen year old son may have Cushing's. They are waiting for a referral to an endo.
• Clarke (mutley) is from Norwich, England. He has had 4 24 hour urine cortisol tests (all indicative of Cushing's) and dexamethasone suppression test (inconclusive). He has been referred for an inpatient stay the hospital for further tests and an official diagnosis.
• Crystal's son is 3 1/2 and had a sudden 10 pound weight gain between February-May 2011.  He has been tested for Prader-Willi.  Crystal thinks he might have Cushing's.
• Dom (05819) is from Ernest, Pennsylvania. He is not yet diagnosed but has many symptoms.
• Ellen (esg31) is from Wilmington, Delaware. Her son has been struggling for almost a year with unexplained physical and psychological symptoms. He has been tested for thyroid issues, Cushing's and pheochromocytoma.
• Eric (Eric O) is from Artesia, California. He is not yet diagnosed with Cushing's but has had CSR for almost 13 years.
• Harry (harry1) is from Nicktown, Pennsylvania. He is not yet diagnosed with Cushing's but he has been diagnosed with diabetes and is doing Cushing's testing.
• James (JamesC) is from Roanoke, Virginia. He is not yet diagnosed with Cushing's but has many symptoms.
• Jennifer (mrsames77) is from Humble, Texas. She thinks her 11 year old son might have Cushing's and she is taking him to be tested.
• Joe C and his wife Selva (joecasas) are from Denton, Texas. He is not yet diagnosed with Cushing's but he has many symptoms and has been diagnosed with diabetes.
• Juletta is from North Carolina. Her 20-year-old son might have Cushing's. He is testing.
• Justamom is from Pittsburgh, Pennsylvania. Her 12 year-old son is being tested for Cushing's. He has many symptoms, but hates needles so progress has been slow.
• Kyle (Kyle) is from Williston, North Dakota. Kyle is not yet diagnosed but has many symptoms.
• Linda P (Jusmom1) is from Harleysville, Pennsylvania. Her son has elevated ACTH, Cortisol and Prolactin but is dexamethasone suppression was normal and he was told he didn't have Cushing's. Linda updated her son's bio after finding a doctor to take him seriously. They'll see Dr. Serge Jabbour at Jefferson Hospital in Philadelphia January 7, 2008.
• Matthaios is from Portland, Oregon.  He is currently attempting to get diagnosed by Dr. Theodore Friedman.
• Mike (mtlmike) is from Montreal, Canada. He is not yet diagnosed with Cushing's but has many symptoms. He is scared and anxious and looking for a solution.
• Nick H (Nickh) is from Wentzville, Missouri, He has had symptoms since 2003 and is testing for Cushing's.
• Oanh (one) is from Portland, Oregon. he is not yet diagnosed with Cushing's but has many symptoms and has had a lot of tests over the years.
• Patrick (Patrick) is from Montreal, Canada. He is not yet diagnosed but has many symptoms. He has his first endo appointment on December 3, 2010.
• Randy (burrman) is from Portland, Maine. He is not yet diagnosed with Cushing's. He saw a news item on Fox News and he thinks his symptoms match Cushing's.
• Tracey (trayseejaw) is from Franklin, New Jersey. Her 10 year old son may have Cushing's.
• Trent (Trent) is from Gardendale, Alabama. He has not yet been diagnosed with Cushing's but he has many symptoms.
• William S (Ryan1976) is from Atlanta, Georgia. He has been told he might have Addison's but William believes he has Cushing's.