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Hi Everyone, I'm so glad i found this site, for the past 20 years i felt i was the only one in the world with this thing,
i was diagnosed when i was 13, i'm 33 now, i've had it for 3 years before that, i got the tumour on my pituitary removed but they took half the gland with it, then i got both my adrenals removed, then i got nelsons, and had some radiotherapy, then my pituitary crashed, is there anyone with a failed pituitary and no adrenals,
i was described as a car with no engine, i'm taking hydrocortisone, florinef, eltroxin, trisiquens, ideos, and i'm also taking growth hormone treatment, i was told that my doctors don't know what to do with me, it leaves me feeling scared of the future, if i want to have children i need to get fsh injections to stimulate my ovaries,
is there anyone else out there that is going through this, if so can you tell me if you have children, after getting the fsh injections, i just feel some days, like , if i'm like this now, what am i going to be like when i 'm in my 40's or 50's, right now, my bones pain like mad, i get constant migrane type headaches, i can't work because i was always ringing in sick from something or other, i've no energy,
please some one tell me that your the exact same that you've got pituitary failure after having cushing's and nelsons etc and that you got fsh injections and had a healthy pregnancy and birth and baby and that it will get better!
Thanks , sorry for been such a moan but i get like this sometimes, i know theres millions of people with worse things and i should be grateful and all, but it sometimes gets me down!
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