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Cushing's Info

It's About Time There Was Some Support!

 

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Latest Member : pdwanwx535
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23
Jul
2010
Shannon, pituitary bio
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I'm 31 years old and feel like I'm 80.  I've been ill for so many different things over the past couple of years.

In the past year alone I've seen 5 doctors who couldn't tell me the time. They made me feel like I was crazy. Even when I got double vision in my right eye and had to wear an eye patch for 3 months. No one could figure out why.  I still have vision disturbances but after two med packs of steriods the double vision went away.

I came across this web site last week and connected with so many things from other people. I printed off the sheets and took them to a new neurologist I was scheduled to see.  To my amazement he completly agreed with me! He said it was very likely I did have cushings and/or PCOS. He scheduled an appointment for a Endocrinologist that specializes in this area and I am to see them Tuesday. I will update from then but I want to say I'm grateful for this site because it gave me some hope of an answer. I've been so miserable. I felt like my soul was trapped by my body and I didn't even have the energy to make it better.

If you're doctor makes you feel crazy, find another one. I know even with insurance it's expensive but help is imperative.

Here's a list of my symptoms:

-hump on my neck (have had for a while and thought it was from bad posture!)
-cyctic acne
-hair loss
-hair growth where it should not be
-loss of libido (I'm 31 this is so not right)
-fatigue
-muscle weakness
-back pain
-fat in the middle
-moon face
-horrible stretch marks
-no period for over a year (my last gyno told me I was just lucky)
-vision disturbances
-depression
-anxiety
-hypertension
-extremly low cholesterol
-hard to breathe, like there's somthing heavy on my chest
-reoccurent kidney stones
-cyst on ovaries
-frequent bathroom visits
-terrible constipation
-swelling of legs and feet
-water rentention

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" Mrs. Fight commented on Day Twenty, Cushing's Awareness Challenge - Cushie Info: So very true about it "being our only shot". After being learning I had Cushing's and then later learning all about it thanks to Cushing's Help and the support of my fellow "Cushies". My husband and I have often talked about how the doctors will have lots of patients and if they get it wrong and one of us slip through the cracks they have a new patient in the waiting room the next day. Our families are left wondering why we are no longer here. The value of knowing about what you have enables you to understand the process, communicate more effectively, participate with knowledge, ask questions, select options for care that are right for you, helps you to explain the condition to those you love or care about and it gives you some small (very small) sense of control over your life instead of being completely overpowered by the illness (any illness). As always thanks Mary O for giving all of us so much! "
Mrs.Flight

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