Cushing's Info

I am 26, married, with a 3 year old son. I was Dx. with Cushing's last month (Dec. 2009).

When I think back now this all started years ago, but just like so many other stories, you go to Dr. after Dr. and everyone just say you need to diet and exercise. I had gained over 20 lbs in the past year and I noticed it didn't matter what I did I could not loose weight and if I did loose a couple of pounds I woluld gain it back and more, especially in my mid section. I too thought I was just over eating and getting too fat, that's why I had chest pain and palpatations, fluid build up, fatigue, big round face, buffalo hump, stretch marks, shortness of breath, blurried vision, insomnia, muscle weakness, mood swings, and depression because my body look and feel so horrible.

I decided something was wrong , this is not just Sx. of overweight, So I made and appt. to see my PCP and told him all about how I was feeling. He noticed in my records that in Nov. 2008 I was hosptilized for pneumonia and had a CT done while there that showed an enlarged Rt. adrenal gland which the MD at that time just ignored. He then wanted to look into that and had me have another CT done along with a 24hr. urine, some blood tests and consult with an endo.

When I went to see the endo she took one look at me and pointed out just about every test book sign for Cushing's there is. I have all the features of Cushion's,  and it's so hard and depressing to go from a young, well porportioned, pretty woman to this disfigured, mixed up mess.

So to make a long story short I have been seeing my PCP, and endo since Dec. 2009 he has put me on BP meds cause I do have HTN because of the illness and fliud pills, my endo has had me get a number of test done and now we are at the point of all possible sucessful Tx. other than surgery leaving that the last resort. She is even consulting with other specialists in Northern Va. about my case because it's both of my adrenal glands that are now 4x as large as they should and overactive.

With one more inpatient blood test to do Fri. 1-22-10, I go back to see my endo in Feb. and maybe by then we can start to moving toward Tx. I thank God for those 2 doctors but I also must say it's only by the grace of God that I have made it and still making it this far with this illness,. you can tell people all day how bad you feel but know one really knows the half of what life is like living with this illness, except God and the one with the illness. But God is still good and my healing is on the way!

And I would like to hear from anyone that has had bilateral adrenalectomy or oral Tx.

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