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I have been struggling with rapid weight gain and fatigue and headaches for the past 8 years or so.
Finally after a lucky break after I fell i had a ct scan on my head and they saw an adnormality, then followed and MRI and then the worst thing i have ever heard in my life. You have a macroadenoma on your pituitary gland that could be causing your headaches says my GP and then he says that because my cortisol which was high but borderline that i don't have cushings.
So he refered me to an endo and he did a panel of bloodwork and my acth is off the charts. So he thinks its cushing's disease...next is the IPSS and then surgery I guess. I am just having a hard time coming to terms with some one like my GP stating that i don't have it after all the signs point to it. It is just beyond me to wonder why some one wouldn't help. I feel left out in the cold and wish i could have fixed this 8 years ago. They figure i have had this acth secreting tumour for about 8 years...hence the worry for eight years.
I have been off of work now for about 2 weeks and with all the things going on I may be off a while...just disrupting my life. Hard to cope but I am staying positive and I have a great wife who has been helping me through this as well as two great boys under the age of 3 so fun at home as well.
I joined this website to find some common stories and mabye some help with some common ground. Hope u guys can help and thanks to all who have already.
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