Cushing's Info

I am sure this is the same old story. I have been sick and in and out of hospitals for the last 3 years. Bone infections, kidney stones, blood clots,osteomyelitis, extreme weight gain, and the list goes on. I am sick of feeling like crap and my family is sick of hearing about it.

Almost all the tests they have done show elevated cortisol levels plus they found a small growth on my adrenal gland. I have a greenfield filter in me so they can not do the specialized mri needed to check the pituitary and according to my endo my results are conflicting. Some results lean toward the pituitary and some to the adrenal. My first urine came back within normal range so I am now doing another, this time a 48hr. plus a midnight saliva test. I am sick of all these tests and always being sick.

I have no desire to do anything, cant even look in the mirror. I hate going anywhere because that means getting dressed (I used to be a fashion designer)and for me that is not normal. My kids do not get it and think I all of a sudden became lazy. I feel like putting a sign on my body that says "Im not fat because I eat all the time' dont look at me with disgust.

I cant believe I am hoping for a clear diagnosis of cushings but I want to get on with my life and want this all behind me. I have already become unable to work, lost my car, and have to rely on my ex-husband for help(which is not a good thing) I want my life and independence back.

I will never take the task of just walking up the stairs for granted ever again.....Adrienne

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