Cushing's Info

Hello.  I was led to this site while searching for information.  I am surprised to find out that so many people have similar stories to my own.

Last summer I went to the ER because of unexplained vomiting.  They said that my liver values were off, and I needed a CT scan.  So I went to my internist and after the scan he called to tell me that they found a tumor on my left adrenal gland.  He told me to stop taking Metformin, and at the time I was taking 850 mg 3 times daily.  I am severely diabetic, have hypertension and am taking 5 blood pressure meds.  I have had a lifetime of weight issues, missed periods for years at a time, have had hair loss on my head, but I shave my chin and mustache every day since I was a teen, and I am constantly tired.  I also am obese, but eat usually once a day now, since my abdomen is so large.  My legs and arms are smaller than the rest of my body, and this has happened over the last 10 years. I have a buffalo hump, and have since I was a teenager.

The last 2 endocrinologists I went to just yelled at me for not eating properly and not monitoring my glucose levels.  One told me that she was glad my daughter is married because I am going to die.  She never checked me for anything.  The crazy part was after the internist called me and said that I would have to have surgery to remove the adenoma, he changed his mind.  All of a sudden, he said I needed to be followed by an endocrinologist, after he knew the two that I had been seeing.  He referred me to a new endo, who immediately said she didn't think I had Cushing's syndrome, but she ordered some tests.  I didn't take them because she was in the process of leaving the practice.  I see a cardiologist who insists that adrenal adenomas are common, and usually don't require any attention.  UMMM, I am on 14 different medications for diabetes, hypertension, depression, and arthritis in my back.  I think the evidence is present, but the doctors don't seem to want to deal with my situation.

So, I changed doctors.  I go to a new endocrinologist on 9/2, and I pray this one will listen.  My health is failing, and my quality of life has sufferred because of all of these problems.

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