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08
Mar
2012
How Reddit saved this Cushie's life
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(CBS News) - If you ever get yelled at for trolling the Internet too much, here's one reason to throw back in your accuser's face: It may save your life.

Bear Silber, a self-professed Redditor, was ill for five years. An active athlete who ran San Francisco's Bay to Breakers marathon in an hour, he started getting strange symptoms including rapid weight gain and high blood pressure. A doctor couldn't diagnose what was going on.

Despondent, he went on Reddit one fateful Saturday night and saw a picture of a man who looked like he had similar symptoms. After reading through the comments, he saw one by a user who suggested the man might have Cushing's syndrome, a disease caused by a tumor that produces high levels of adrenocorticotropic hormone or cortisol, a natural hormone created by the pituitary gland.

Immediately, Silber looked up the symptoms of the disease, which include weak muscles, bone pain, and upper body obesity, and found out he had every single one listed.

We'll let Silber tell you the story himself.


The National Institutes of Health has more on Cushing's syndrome.

From http://www.cbsnews.com/
8301-504763_162-57392657-10391704/
how-reddit-saved-this-mans-life/

Last Updated ( Thursday, 08 March 2012 10:59 )
 
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" Please stand up and be acknowledge. Brag all you want. If it weren't for this site I would have no knowledge about Cushings except for a picture of "me" in an old medical text book. The only thing in that book was a picture of a lady that could have been my twin and 2 paragraphs with some symptoms and the word "rare". Every doctor that I have met to date still uses that word. I appreciate and applaud you for all you do. Thank you. "
Trisha

Read These?

Aly H, 2-time Pituitary Patient 5/6/2010

Aly had 2 pituitary surgeries and she is still producing cortisol. She might have to have radiation treatment but right now they are still testing her cortisol levels.

Listen to the archived intervi [ ... ]


(Pasireotide) Investigational drug improves symptoms of Cushing’s disease

BOSTON — Phase 3 data from the PASPORT-CUSHINGS trial show significantly reduced cortisol levels and improved quality of life in patients with Cushing’s disease who were assigned to pasireot [ ... ]


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