I found out I had Cushing's Syndrome after I finally had my daughter in June, 2010. It was a long journey to get pregnant and looking back my symptoms were glowingly obvious, but unfortunately my doctor's either didn't notice them or brushed them off as if they were unimportant.
After my daughter was born I was not able to breast feed and my period never returned, not that it had ever been regular, and I asked my ObGyn for a referral to an endocronologist. She laughed and said I was experiencing the "post-partum" crazies but humored me anyway.
At my first meeting with my endo, before he ran a single test, he looked at my round face and body, thin hair, bruised and skinny arms and legs and told me he thought I had Cushings. After my blood pressure cam back at 176/125 he said he was almost positive. After weeks of blood tests and urine tests and an MRI he confirmed his original diagnosis.
The day before Thanksgiving in 2011 I went in and had a 6mm tumor removed along with my pituitary gland. The tumor was so large they couldn't save any of the gland.
Recovery has been long and hard and I still feel like crap. I ache, I'm constantly tired, and I'm on so many drugs that I have two pill boxes and three alarms set to remind what to take and when to take it. It's hard. But it's getting better. I'm down to 5mg of prednisone a day and I was able to stop taking my blood pressure meds. I've also lost 10 pounds so it is slowly getting better.
My doctor says my daughter is a miracle because no science could ever show how I was able to carry a baby to term with a nonfunctioning pituitary gland. But, I already knew that.