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I am a 41 yy female. Officially diagnosed with Cushing's in Feb. 2010.
I had a mis-diagnosis of Adrenal Hyperplasia previously from a previous endocrinologist. Once I found the right endocrinologist who listened to me, I was diagnosed with a pituitary tumor 4 mos later. I had trans-phenoidal surgery on March 7 2011. ( MY NEW birthday!)
My recovery was difficult, I didn't know what to expect and I had no one to turn to. I wished I had seen this site before!
I am now steroid-free. and at my August 2011 appt, just 6 mos post-op. My neuro-surgeon said " You have a VIRGIN brain!"
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" If it wasn't for MaryO's hard work in creating an online community I don't know if I'd have made it through all these years. She's a behind the scenes kind of person, she doesn't ask for much and often winds up on the periphery but despite her own health challenges she gives and gives and gives and has helped thousands of people. "
Health Activist Award 2011
Read These?
Mimi, steroid-induced bio
Hi, I am Mimi a Peruvian 57 year old I live in Lima-Peru. Since there was no choice to put my country I selected Miami Beach where my oldest son lives.
I took large dozes of prednizone during almos [ ... ]
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Type 1 Diabetes, Celiac or Addison’s?
At diagnosis of type 1 diabetes, approximately 33% of patients are positive for at least one additional organ-specific autoantibody, according to new data.
Researchers at the Barbara Davis Center [ ... ]
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