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18.05.2013

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Pulling Myself up by my Frayed and Worn Out Bootstraps: A blog post by Autumn...We will be wounded. Scars will remain. But, it is the way that we cope with the… 14 hours ago
Texas Medical Center Announces Brain, Spine And Pituitary Tumor Center: The Texas Medical Center announced that a brain and pituitary tumor treatment center will be established… 18 hours ago
Comment added to SoVeryTired, Undiagnosed Bio: ...Years ago I had steroids injected in my neck due to a severe burn due to a scarf around my neck getting… 1 day ago
Friday is the last day! Help Grow the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to ask… 1 day ago
Catherine J (Catherine Jones), Pituitary Bio: Catherine J is from Prosser, Washington. She had 3 pituitary surgeries, gamma knife radiation, and… 1 day ago

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Christina B, adrenal bio

Dec

2011

Christina B, adrenal bio

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Last Updated ( Saturday, 10 December 2011 16:54 )

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Quality of Life Questionnaire for Cushing disease

Dear participants, We are trying to design a specific Health related Quality of Life Questionnaire that aims to assess limitations and restrictions in daily life caused by persistent cortisone exc [ ... ]

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The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus: Friday, May 17 at 8PM eastern is the deadline for this. We want to have Caucus Members from all… 2 days ago
Hyperthyroidism due to thyroid stimulating hormone secretion after surgery for Cushing's syndrome: A novel cause of the syndrome of inappropriate secretion of thyroid stimulating hormone: Daisuke Tamada, MD1, Toshiharu Onodera, MD1, Tetsuhiro Kitamura, MD, PhD1, Yuichi Yamamoto,… 3 days ago
Ask your Member of Congress to join the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to… 1 week ago
MR Brain Spectroscopy Detects Damage In The Hippocampus Of Patients Exposed To Excess Cortisol: New research shows that patients who are "biochemically cured" of Cushing's syndrome have levels of brain… 1 week ago

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The Deadline is Friday for Helping Grow the Rare Disease Congressional Caucus: Friday, May 17 at 8PM eastern is the deadline for this. We want to have Caucus Members from all… 2 days ago
Hyperthyroidism due to thyroid stimulating hormone secretion after surgery for Cushing's syndrome: A novel cause of the syndrome of inappropriate secretion of thyroid stimulating hormone: Daisuke Tamada, MD1, Toshiharu Onodera, MD1, Tetsuhiro Kitamura, MD, PhD1, Yuichi Yamamoto,… 3 days ago
Ask your Member of Congress to join the Rare Disease Congressional Caucus: Help us strengthen the rare disease community's voice on Capitol Hill! Please take 3 minutes to… 1 week ago
MR Brain Spectroscopy Detects Damage In The Hippocampus Of Patients Exposed To Excess Cortisol: New research shows that patients who are "biochemically cured" of Cushing's syndrome have levels of brain… 1 week ago
Salk scientists find potential therapeutic target for Cushing's disease: LA JOLLA, CA---Scientists at the Salk Institute for Biological Studies have identified a protein that… 1 week ago

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