My story sounds very typical of those i have been reading since becoming a member on this site.
I was a healthy, happy mother of two in the year 2000. I am a registered nurse and was working part-time while raising my children at that time. I began having unusual pain in my joints January 2000. I had serious weakness in my hands and arms and found a doctor. I hadn't been to a doctor for ten years since the birth of my youngest child at that time. I spent the next ten years getting tested and told there was nothing wrong with me. I had many abnormal tests, but nothing conclusive for diagnosis. I went to a teaching hopsital in Chicago and had a rhuematologist diagnosis fibromyalgia. I was thankful for the diagnosis.
Later, an endocrinologist found a pituitary microdadenoma as a result of unusual thryroid function, and told me it was not a problem in my life at the current time and would not cause any problems. I went from doctor to doctor, looking for help and found none.
I developed more symptoms and in January 2011, the symptoms became unmanageable and interfered with my activities of daily living. I would sleep for three days in a row, only getting up to get a drink from time to time during those days.
I gained 25 pounds in a period of five weeks. My feet hurt so much I couldn't walk some days. I got muscle spasms that took me to the er. Finally, after discussing all this with my primary care physician, in the presence of family members who added their opinions of the changes occurring in me, I got an opinion that I may have Cushings. Blood work and urine tests later, I am back to an endocrinologist, waiting for diagnosis confirmation, I am thankful I found this site at this point in my adventure.
I will need the support and information and I finalize the diagnosis and begin treatment, eleven years later.
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