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It's About Time There Was Some Support!

 

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Jun
2011
Susan, undiagnosed bio
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I am having a problem getting an official diagnosis but I am 99.9% sure I have Cushings.

I am a 41 year old female.  I have suffered with thyroid Graves issues for the past 20 years and have had radioiodine 2 times.  My thyroid is at normal levels with Sythroid.  For the last two years plus I have had extreme facial hair growth. I have tried everything from laser, to electrolysis to waxing, and nothing works.  I have had extreme weight gain in mid section only and I look like the photos of persons with Cushings.  My face is red and round.  I am bruising and fatigued and achy and can't move sometimes!  Have anxiety and depression.

I had two 'borderline' 24 hour urinary cortisol tests with numbers in the low 100s.  I had bad reaction to Dex Supression and did not finish test.  My salivary test was normal.  My endo keeps telling me its too rare and I dont have it.  But I read your stories and I feel like I fit every characteristic.

The doc finally agreed to MRI of Pituatary now.  Do I also need Adrenal also?

If anyone else has had issues getting a definitive diagnosis or has any suggestions or a good doc in the NYC area, I would love to hear from you.

Frustrared in Scarsdale..... Sue

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