I have been ill now for over 4 years; in fact, I may have had my first symptoms of Cushings almost 17 years ago. After the birth of my last child I gained 50 lbs. in just 6 months without a change in diet or activity. This is when I also remember noticing for the first time that I had excessive dark hair on my chin.
A few years later my dentist noticed my teeth were spreading apart. Shortly after that I experienced what I think was a panic attack with high blood pressure causing me to go to the ER.
Then in Feb. 2007 I had a hypertensive crisis. This would be the first of many. All heart & kidney tests in the last 4 years have been normal. In April 2011 I had extreme dizziness & high blood pressure that caused me to go to the ER once again. The ER doctor thought that maybe I had a blood clot in my lungs so he ordered a CT which showed that I didn't; in fact, he sent me home saying that maybe I needed to be reevaluated for my sleep apnea problem. I picked up the medical records about 2 weeks later and learned that I had a 1.32 cm left adrenal mass & blood in the urine. The dr. never told me about either of these.
I went to a university hospital thinking that I would get a diagnosis for sure. What disappointment!! The doctor took 4 blood tests (aldosterone/renin & plasma metanephrines done incorrectly) and later told me that I had no endocrine problem . I told him of the hirsutism and of calcification on my thyroid (chiropractor revealed this to me) and yet I don't have an endocrine problem. Right!!!
So now I go to my primary doctor and he orders a thyroid ultrasound. Surprise, Surprise!! I have a multi-nodular goiter. No wonder I can't swallow right and I stop breathing when I sleep. So now I am going to a new university hospital and if I don't get answers there, I already have an appointment in July with Mayo. I am feeling so ill right now that I am in bed most of the day. The endocrinologist that I saw told me to take Xanex since my problem is not endocrine. Even when I do take anti-anxiety meds I still have the symptoms. That is not the answer.
I want to mention that I recently picked up some medical lab records that did indicate that one of my p.m. cortisol tests showed elevated cortisol (in 2009). I also had slightly high calcium (9.8). Just last month before I knew I had thyroid problems, I had the overnight cortisol suppression test. It was negative for Cushings. But I was reading on here that the kind of tumor you have can make the results different.
Can I know for sure that I don't have Cushings by this one test?