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28
May
2011
Jan, adrenal bio
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My Comments: Diagnosis   
Appendicitis perotinitis    1971
Hypothyroidism    1975
Hemroidectomy    1978
Tubal Ligation    1979
Chronic sinusitis surgery    1994
Sjogren's or Lupus abnormal ANA    1999
Pneumonia    1999
Mycoplasma 3 strains    2001
Chlymedia 3 strrains    2001
Sjogren's    2001
Lymphopemia    2001
Depression    2001
Carpal tunnel surgery    2001
4 trigger digit surgeries    2001
GROSS EDEMA STARTED    2003
Hemochromatosis H63D Homo    2003
Ferritin > 700   
Barrett's Esophogus    2003
Duodenal Ulcer    2003
Phlebotomies    2003
Blood protein urine chronic     2003
Sleep Apnea    2003
Rechecked     2007
Type 2 Diabetes    2007
High Blood Pressure    2007
Cyst on back causing joint pain    2007
3 Pain Shots   
Stress Test    2008
Lyme Disease    2008
Depresssion    2008
Pitting Edema    2008
Angioedema 2010
Cushing's    2011
Adrenal Hyperplasia 2011
Polymyositis    2011

I can't work, look like a cow, my life is and has been a disaster.  I used to be cute and pretty but no one even can imagine that now.  I haven't had sex with DH since 2003 because I am so ashamed of my body I won't let him and he doesn't want to.  My one wish at 59 years old is to look normal and make love with my husband one more time before one of us dies.  He's 72 but is full German and healthy, but none of us will live forever..  I want my adrenals removed, but not sure how to achieve that. 

I'm so thankful for my doctor for diagnosing Cushings and adrenal hyperplasia (all others said I was just fat) but he downplays everything and I don't think he'll go for surgery.  Any ideas would be appreciated. 

NO ONE SHOULD HAVE TO GO THROUGH WHAT WE HAVE HAD TO ENDURE, BUT THE WORST OF IT IS NO ONE UNDERSTANDS THIS NIGHTMARE BUT THOSE OF US WHO ARE IN IT!

Note: Jan has not authorized her email address to be added, so please add comments to this bio below.

 
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" By the way, I viewed your website and found it very thorough with lots of helpful information. The bios were really moving. Breaks your heart to read how long it has taken some to be correctly diagnosed and helped. "
Mary Lee Vance, MD of the University of Virginia

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