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15
May
2011
Amanda, undiagnosed bio
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Hello, my name is Amanda and my doctor says she thinks I have Cushing's.

I went in to see why my periods were so light and why I gained 40 pounds in 6 months with no increse in food as well as this what I thought at the time was a soft tissue tumour on my back was. Well,, immediately she asked me if I knew what Cushing's was,, I did because I was looking online into reasons for this ''buffalo hump'' but all I saw was extreme cases and Im not quite there. I said I couldnt have it,, my face is not that round and Im not super heavy,, though I went from 160 to 209 in 6 months. She said she wanted further testing as Buffalo humps are only caused by morbid obesity and Cushing's.

Well,, Next morning I took my fasting Cortisol test,, and low behold, it was high,, 27 to be exact,,, I showed high lipids , high suger , low calcium and protein, as well as low red blood cell count,, so I am guessing that Cushing's is a real potential. My dex test ( the overnight low dose one) did supress though,, to 1.7, so the endo said I dont have it,, but my doctor had me do a CT of my brain and is having me see a new Endo. I went to the emergency room cause my whooping cough vac left me super red and swollen and hard at the injection site and the first thing the Physician asked me is if I was being treated for Cushing's,, due to my back he said,, he noticed my hump right away. i think this all started around 11 years ago when I was prego with my son,,, I weighed 135 at the start,, the weight I always had been,, at 5 months I was 148,, then all of a sudden in a span of 4 months,, I went from 148 to 220!!! I wasnt eating that much! No one said anything,, I suffered major post partum depression,, always tired, arms burned when doin tasls,, back hurt as well,,, I could never get below 180 ,,, then almost 9 years later I got prego again and I actually dropped weight real fast,, from 190 to 160  in about 2 months,,, then all of a sudden , 40 pounds in 6 months and climbing, no matter what I do. My hair is dry,, falls out and breaks,, my skin is getting wrinkles and is blotchy in color ,, especially my chest. I have no libido ;(...... I do have a period , and what is weird is that I still have it even when I dont take placebo birth control pills,,, I go rite to the active pills but still a period,, Its longer too since I started the pill,, it used to be super light and 2 to 3 days now it is 7 days to 3 weeks long !!! ,,

Does any one else have this issue??? well that is it in a nutshell,, lets hope we get this fixed before I cant get threw my door lol,, thanks for listening.

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" This was the one website i kept returning to thru out my journey with cushings. Thank you Mary O for providing a support center and a plethera of information on this rare disorder! It was so helpful to be able to talk to people and to know that I was not alone! This site and all the people involved in it helped me stay strong and also realize that i was lucky..that many people had endured much more..it gave me hope to know that i could get thru it! It also allowed me to be more knoweledgeable about my disease. Thanks again! "
Fabiana A

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