Life is crazy! Most of my symptoms were mild and came on slowly over the years. 2 years ago I realized something was going on when I was training for my first marathon and I gained 20 lbs. I thought it was probably because I was a type 1 diabetic and my diabetes was getting harder to control. I was using a lot more insulin and I was also hypothyroid and my medication wasn't quite right.
About a year later I went to a new endocronologist (my previous doctor had retired 5 years earlier and I was in search of the right doctor for my needs). I told him that I had trouble losing weight and I had insomnia for the last 5 years. After he did my blood work he told me that I had high cortisol levels. He told me about Cushing's disease but told me that I didn't have it. However, he would keep testing.
That was the first time I had heard of Cushing's. I looked it up and agreed that I didn't look like someone with Cushing's. But when I went down the checklist I realized that I had most of the symptoms to some degree. Some of the problems I had were chronic that I had for several years (insomonia, anxiety) and some only lasted for a few months and then went away (like backaches, severe acne, dizziness). This is when I realized that maybe Cushing's was a real possibility. But what are the odds that I would have this rare disease?
After a year of tests, I finally saw a specialist. On March 24, 2011, he told me that if it "waddled and quacked like a duck, it was a duck." I finally had my answer. A few days later, on the 29th, I had my pitutary tumor removed.