This is the latest in the Cushing's Help family of websites. Be sure to check them all out! It all started with www.cushings-help.com in July of 2000...
Track Health & Fitness Achieve your goals, print charts for your doctors. Add anything else that you would like to track. These are private graphs, available only to you.
A special menu along the bottom of each page where you can take notes, make changes to your profile, subscribe to RSS feeds and much more.
Add your Twitter user name and the last 10 "tweets" will show up in your profile for other members to see
Members can submit links (URLs), send each other PMs, email each other directly, add avatars, add Helpful Doctors and rate current ones or add reviews. They can also add articles, events and meeting venues. Some articles are available to members only.
A New Blogging Challenge: If any other Cushie bloggers are interested in this challenge, let me know and I'll promote your blog…2 days ago
Home
Cushing's Help and Support
18
Mar
2012
Welcome to Cushie.info!
Welcome to the latest Cushing's site, Guest!
Please be sure to register for this site to take advantage of all its features!
Due to a large number of would-be spammers and hackers, a larger measure of security has been added to the registration process. A passphrase is now required to register for this site. You can get this here. Sorry for any inconvenience!
Please note that new members may be approved by an administrator before continuing.
Something new of interest to Cushies most every day.
May, 2012: Please note that there is a current backlog of about two weeks for submitted bios to be added to the website. We apologize for the wait, and thank you for your patience.
Please note that there is a current backlog of about two weeks for submitted bios to be added to the website. We apologize for the wait, and thank you for your patience.
Occasional Newsletters have returned:Members of this site will automatically receive these occasional newsletters. Of course, you may opt-out at any time. Thank you for your interest. Non-members may subscribe through the Newsletter Subscription module on the left side of this page.
NEW! We have signed up for as a way of further spreading the word
NEW! Google +1 button added to every page here. Find it along the bottom of of each page
Use the +1 button to publicly show what you like, agree with, or recommend on the web. The +1 button can appear in a variety of places, both on Google and on sites across the web. For example, you might see a +1 button for a Google search result, Google ad, or next to an article you're reading on your favorite news site. Your +1’s and your social connections also help improve the content you see in Google Search.
Note: If you click a second time, it will remove your vote.
• There is a new countdown timer near the calendar to let you know how long it will be to the next live interview.
•Still being added. A FAQ (Frequently Asked Questions). Directions are in each category for adding your own question. IMPORTANT: The information and material posted on this Web site is intended as general reference information only. Specific facts and circumstances may alter the concepts and applications of materials and information described herein. The information provided is not a substitute for professional advice and should not be relied upon in the absence of such professional advice specific to whatever facts and circumstances are presented in any given situation.
Redone: Thanks to a suggestion by Patrick, this site now had a "template chooser". It now automatically detects your device and chooses the alternate template for you. If you are on a cellphone, this site should have already loaded a special template optimized for PDAs and mobile phones.
•"Read these?" On the right side-bar. Random articles you may have missed.
• Donation Tracker on the message boards so that people can easily see how the donations are going and add a one-time donation from that "app".
• Success Stories! These will be culled from the bios and posts on the message boards. Personal Information will not be shared without member permission.
• A section of "Male-Only" bios. 2007 through 2010 have been done so far. Older pre-2007 adrenal and ectopic bios have been added. Names A through D of the older pituitary bios have been added now.
• Live Talk / Video Chat at the bottom right of each page in the stationary toolbar. Please note that you need to obtain a password to enter and a second to broadcast video. Please contact MaryO on Facebook or the message boards for this password.
• Each article on this site allows for reader comments and suggestions.
• The Cushing's Boards are finished with a major upgrade and facelift. The forums are optimized for viewing on cellphones.
• Medical Centers. These are centers which specialize in Cushing's, pituitary or adrenal patients. If you, as a patient, have one that you'd like to have added, please send any info you may have to Mary O'Connor (MaryO). Thank you!
• Cushie Toolbar: Be the first to know! The Cushie Toolbar features a Google search box, the 911 Adrenal Crisis! page, the Cushie Reads book recommendations page, Cushie Calendar, all the bios, arranged by diagnosis type or date, add (or update) your bio, our locations around the world, the message boards and chatroom, Helpful Doctors list, add (or update) your Helpful Doctor, support page, scrolling message area for Cushing’s news, Cushing’s blogs, NIH Clinical trials for Cushing’s, pituitary and adrenal, the Cushings Help Organization cause on Facebook, Staticnrg and Cushings on Twitter, new CushieWiki and listen to the Cushing’s podcasts right from this toolbar.
The Cushing's Help and Support Group has been upgraded to the new groups format, which makes it easier for members to connect and share. There are 595 members.
A site translation feature has been added to all pages. On the right side of every page there is a box containing flag icons. Click the flag icon to translate the page into another language.
Clicking Still Works! Support Cushing's ...With A Click.
As you know, Cushing’s Awareness Day is April 8, 2012. Greater awareness and more resources can positively impact the lives of our fellow Cushies—and you can do something about it.
Now through April 20th, Corcept Therapeutics will donate $5 to the Cushing’s Support and Research Foundation (CSRF) and Cushing’s Help for your click.
Make an impact in the Cushing’s community today through a simple click (http://cushingsawareness.korlym.com/). Spread the word among your friends and family, and watch your impact grow!
We've just surpassed 21,000 "Likes" on Facebook, so we're celebrating.
We're inviting 21,000 new people to start using iGive by Dec. 31. They'll earn $10 or more free for Cushings Help. Actually, you get to do the inviting, we'll provide the money.
Just send invitees this link or post it on Facebook or other sites (you can even forward this e-mail):
Average Overall Rating Cushings (cushings-help.com) 5 out of 5 based on 27 user reviews.
The Newest review is:
SusanM:Amazing Website After twenty-seven years and having seen 14 endocrinologists, I found this website. I travelled to see one of the doctors on the helpful doctors list and diagnosed with Cushings Disease. The MRI the next day confirmed the tumor on the pituitary gland.
I learned much from this site. I learned that it takes patience and persistence with this disease. I also learned that a patient must be put through a full testing protocol to rule in or rule out Cushings. I also learned that there is much to be learned by the medical profession about this disease that is not widely known.
MaryO, you are amazing. Your website is also amazing. Thank You.
radtravler: LIfe saver This website saved my life. I highly recommend it to anyone with Cushings or family and friends of a Cushie.
casperslove: Cushings-help.com is great! There is SO much valuable information on this site. This a great site for someone who has Cushings or anyone who wants to learn about Cushings! This site helped me so much, I would recommend it to anyone!
Jens: Useful, accurate Helped me when I was getting diagnosed years ago and helps me now. Has information to help get tested correctly and find doctors that know what they are doing. An informed patient is going to get help. Information here is helpful and accurate.
patv: Absolutely the best source of Cushings information in one place. This is the site to go to if you need information on Cushings. In fact I would suggest it to anyone with a suspected pituitary/adrenal issue. The site is so full of good information you could spend hours reading it. The forums are fantastic. A real community feel where questions are asked and opinons are offered without judgement.
Thank you MaryO. What you created changed my life.
Pat
Koo: Have my life back to MaryO and the Cushies on this site! Forever grateful! After struggling for years I searched online for answers and found Cushings-help. Everyone gave me accurate and unbiased information. I gained friends and knowledge of my disease. Using this information I made informed decisions about fighting Cushing's and regaining control of my life. Thanks Mary, and everyone of my friends there.
MoxieMelissa: The best source of Cushing's help on the whole wide world wide web! I owe my life to MaryO, who founded the Cushing’s Help website and its message boards over 10 years ago after suffering with Cushing’s disease herself. MaryO set forth to create an online community that was lacking when she sought her cure.
I have met many shining souls and made incredible friends participating on the Cushings-Help.com message boards in the past four years. We were lost without each other. We each came to the message boards new and scared. We leaned on each other, as we ran everything about our experiences through these people – these new-found and desperate friends who were in the same boat as us. We learned from each other. Together, we shared our stories of terrible doctors’ appointments where we were dismissed as fat and lazy. We celebrated every high test result, every clearance for surgery, and all the other details that move us forward on the journey for this disease. In this community, we found the strength to keep fighting to get cured from the disease that we were sure we had but others weren’t. We Cushies have faced seemingly insurmountable odds, and we have done so together.
Our fury and outrage male us determined to protect future undiagnosed Cushies from all of our heartaches and woes. We hold a strong desire to create a powerful online community, and in 2008 many of us started personal blogs. My http://CushingsMoxie.blogspot.com is my platform for outreach, and to date, my blog has been over 128,000 pages views. I am glad to do my part.
I learned from people who had been in my shoes. It was only through struggles with doctors and testing to diagnosis to surgery -- with this process often repeated multiple times unfortunately -- and eventually to healing and happiness that I learned what this disease is, how it truly presents itself today (not 20 years ago), how it affects the people who have it, and how to best guide myself through the quagmire. Because of MaryO's compassionate vision and my fellow Cushies’ guidance and support on the message boards, I have steered myself to diagnosis twice for a disease that most have never heard of and doctors consider too rare. I just can't even imagine where I would be without the Cushings-Help.com site.
" I like this site a lot. It helped get me diagnosed with Cushing's and told me what to expect after surgery.
I think it would be helpful for anyone who thinks they might have Cushing's or if one of their family members is dealing with it. "
I had cushing's in 2002 caused by an adrenal cancer in my right adrenal gland. I had surgery and the cushing's went away.
The cancer has recurred2 more times; now for the third time. I will have su [ ... ]
Hi There. I am 48 years old living in Cape Town, South Africa.
I was diagnosed 3 months ago with Cushing's caused by 4.5mm microadenoma on my pituitary. I had transsphenoidal surgery on 31 May 2010 [ ... ]
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