This is the latest in the Cushing's Help family of websites. Be sure to check them all out! It all started with www.cushings-help.com in July of 2000...
Scheduled Text Chats are every Wednesday starting at 9:00 PM Eastern.
The Chatroom is always open so you can chat whenever you want.
Click the title above (The Next Scheduled Text Chat) to access the room.
We always need people to be interviewed in the BlogTalk Interview series. These interviews usually take place on Thursday nights at 7:30PM Eastern but you can do this at any time that's convenient for you.
You do not need to be diagnosed to be interviewed!
Upcoming guests include Dr. Ted Friedman, Robin, Sherri, Monica, Debbie, PhilB, Elizabeth, Steve, Missaf, Tammie, Jada, Jen, Traci, Cindy, Jo and Corrie, Nicole (copacabana) and Dr. William Ludlam.
2nd California Pituitary Hormonal Health Symposium, October 22, 2011; PNA Webinar: "Growth Hormone Deficiency: Just the Facts!"; Cushie Convention 2011, Winnipeg, MB, Canada or St. Louis, MO, USA, 11/18-20/2011
Track Health & Fitness Achieve your goals, print charts for your doctors. Add anything else that you would like to track. These are private graphs, available only to you.
A special menu along the bottom of each page where you can take notes, make changes to your profile, subscribe to RSS feeds and much more.
Add your Twitter user name and the last 10 "tweets" will show up in your profile for other members to see
Members can submit links (URLs), send each other PMs, email each other directly, add avatars, add Helpful Doctors and rate current ones or add reviews. They can also add articles, events and meeting venues. Some articles are available to members only.
Please be sure to register for this site to take advantage of all its features!
Due to a large number of would-be spammers and hackers, a larger measure of security has been added to the registration process. A passphrase is now required to register for this site. You can get this here. Sorry for any inconvenience!
Please note that new members may be approved by an administrator before continuing.
Have You Been Diagnosed With Cushing's? Earn $125-$250
We invite you to help us create better information, tools, and resources for people with Cushing’s Syndrome
How: Share your opinions and give input in a one-on-one confidential interview. Your opinions will remain confidential. The overall results will help others with Cushing’s Syndrome.
When: Market research interviews can be conducted by phone or in-person, in a location near you.The interview will last approximately 45 minutes.
If you are interested in a phone interview or in-person interview, please contact Clair Carmichael Johnstone (see details below). More information (including cities and locations for in-person interviews) will be provided on the phone.
Am I Eligible? If you’ve been diagnosed with Cushing’s Syndrome and still experience symptoms of Cushing’s you are eligible to participate. Cushing’s Syndrome includes: Cushing’s Disease, ectopic Cushing’s and adrenal Cushing’s. Patients should have been diagnosed within the last 10 years.
At this time, patients who are in remission, were diagnosed more than 10 years ago, or have had a bilateral adrenalectomy are not eligible for research.
Details: Participants eligible for market research will be asked to participate in the 45-minute interview. Patients participate also receive an honorarium (payment) for your time. Those who participate in an in-person interview will be compensated $250 and those who choose a phone interview will receive $125 for their time.
Why? Corcept Therapeutics is interested in hearing from people who suffer from Cushing’s Syndrome in order to improve treatment and information available. This can lead to improved education and resources for those with Cushing’s and physicians treating Cushing’s.
How do I find out more?
If you have questions or would like to participate, please contact Clair Carmichael Johnstone at:
Toll-free number: (800) 856-6706, or
E-mail:
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Please provide your name, phone number, and the best times to reach you so we can follow up promptly.
We've just surpassed 21,000 "Likes" on Facebook, so we're celebrating.
We're inviting 21,000 new people to start using iGive by Dec. 31. They'll earn $10 or more free for Cushings Help. Actually, you get to do the inviting, we'll provide the money.
Just send invitees this link or post it on Facebook or other sites (you can even forward this e-mail):
NEW! We have signed up for as a way of further spreading the word
NEW! Google +1 button added to every page here. Find it along the bottom of of each page
Use the +1 button to publicly show what you like, agree with, or recommend on the web. The +1 button can appear in a variety of places, both on Google and on sites across the web. For example, you might see a +1 button for a Google search result, Google ad, or next to an article you're reading on your favorite news site. Your +1’s and your social connections also help improve the content you see in Google Search.
Note: If you click a second time, it will remove your vote.
More about +1 from YouTube:
NEW!SiteLock Security added to the CushieWiki to protect us from malware, spam, cross site scripting (xss) and SQL injections. The CushieWiki will be scanned daily.
• There is a new countdown timer near the calendar to let you know how long it will be to the next live interview.
•Still being added. A FAQ (Frequently Asked Questions). Directions are in each category for adding your own question. IMPORTANT: The information and material posted on this Web site is intended as general reference information only. Specific facts and circumstances may alter the concepts and applications of materials and information described herein. The information provided is not a substitute for professional advice and should not be relied upon in the absence of such professional advice specific to whatever facts and circumstances are presented in any given situation.
Redone: Thanks to a suggestion by Patrick, this site now had a "template chooser". It now automatically detects your device and chooses the alternate template for you. If you are on a cellphone, this site should have already loaded a special template optimized for PDAs and mobile phones.
•"Read these?" On the right side-bar. Random articles you may have missed.
• Donation Tracker on the message boards so that people can easily see how the donations are going and add a one-time donation from that "app".
• SiteLock Security added to protect us from malware, spam, cross site scripting (xss) and SQL injections. This site will be scanned daily.
• Success Stories! These will be culled from the bios and posts on the message boards. Personal Information will not be shared without member permission.
• A section of "Male-Only" bios. 2007 through 2010 have been done so far. Older pre-2007 adrenal and ectopic bios have been added. Names A through D of the older pituitary bios have been added now.
• Live Talk / Video Chat at the bottom right of each page in the stationary toolbar. Please note that you need to obtain a password to enter and a second to broadcast video. Please contact MaryO on Facebook or the message boards for this password.
• Each article on this site allows for reader comments and suggestions.
• The Cushing's Boards are finished with a major upgrade and facelift. The forums are optimized for viewing on cellphones.
• Medical Centers. These are centers which specialize in Cushing's, pituitary or adrenal patients. If you, as a patient, have one that you'd like to have added, please send any info you may have to Mary O'Connor (MaryO). Thank you!
• Occasional Newsletters are Coming Back in January:Members of this site will automatically receive these occasional newsletters. Of course, you may opt-out at any time. Thank you for your interest. Non-members may subscribe through the Newsletter Subscription module on the left side of this page.
• Cushie Toolbar: Be the first to know! The Cushie Toolbar features a Google search box, the 911 Adrenal Crisis! page, the Cushie Reads book recommendations page, Cushie Calendar, all the bios, arranged by diagnosis type or date, add (or update) your bio, our locations around the world, the message boards and chatroom, Helpful Doctors list, add (or update) your Helpful Doctor, support page, scrolling message area for Cushing’s news, Cushing’s blogs, NIH Clinical trials for Cushing’s, pituitary and adrenal, the Cushings Help Organization cause on Facebook, Staticnrg and Cushings on Twitter, new CushieWiki and listen to the Cushing’s podcasts right from this toolbar.
The Cushing's Help and Support Group has been upgraded to the new groups format, which makes it easier for members to connect and share. There are 569 members.
A site translation feature has been added to all pages. On the right side of every page there is a box containing flag icons. Click the flag icon to translate the page into another language.
" Both [you] and MaryO have provided so much help and comfort (not to mention tons and tons of hard work) by posting information and fostering this online community. I have never met another cushie in person, but I have connected with many online and their support has been invaluable. "
Wednesday, April 20, 2011 - Elsevier Global Medical News BY ELIZABETH MECHCATIE
Surgical treatment of a pituitary incidentaloma is recommended when the lesion is causing a visual field deficit o [ ... ]
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Site Design and Maintenance: Mary O'Connor, Founder and Webmaster
