Comments for CushieBlog

Comment on Day Fifteen, Cushing’s Awareness Challenge by CushingsHelp

CushingsHelp — Wed, 16 May 2012 17:16:48 +0000

Thanks so much, Kate

Comment on Day Fifteen, Cushing’s Awareness Challenge by Kate

Kate — Wed, 09 May 2012 10:38:52 +0000

Love this, Mary! ~Kate

Comment on Day Fifteen, Cushing’s Awareness Challenge by Day Twenty-nine, Cushing’s Awareness Challenge : CushieBlog

Day Twenty-nine, Cushing’s Awareness Challenge : CushieBlog — Sun, 29 Apr 2012 04:08:51 +0000

[...] I carry a print out of this everywhere I go because I find it very soothing. This print out is in a plastic page saver. On the other side there is a Psalm 116, part of the post from Day Fifteen. [...]

Comment on Day Twenty-Three, Cushing’s Awareness Challenge by The way it was. : CushieBlog

The way it was. : CushieBlog — Mon, 23 Apr 2012 16:15:33 +0000

[...] Awareness Challenge and it echoes how we often feel. I actually posted about it in my Day Twenty-three post, as [...]

Comment on Day Twenty-Three, Cushing’s Awareness Challenge by Catherine Hughes

Catherine Hughes — Mon, 23 Apr 2012 08:53:07 +0000

Hi Mary!

I'm glad you liked what I wrote. Your site really helped me, even though it turned out that i had hypopituitarism rather than Cushings. I do still suspect that my daughter is a Cushie, though. I think you might also like today's post, in which I've referenced your site again: http://wheniwasyou.wordpress.com/2012/04/23/the-w…

Thanks again for what you do.

Comment on Day Six, Cushing’s Awareness Challenge by Day Twenty-Three, Cushing’s Awareness Challenge : CushieBlog

Day Twenty-Three, Cushing’s Awareness Challenge : CushieBlog — Mon, 23 Apr 2012 04:03:03 +0000

[...] My diagnosis was pre-Internet which meant that any information had to be gotten from libraries, bookstores, magazines…or doctors. In 1983 to 1986 I knew something was terribly wrong but there was no backup from doctors, family or friends. My first hope was from a magazine (see Day Six) [...]

Comment on Day Twenty, Cushing’s Awareness Challenge by Mrs. Fight

Mrs. Fight — Fri, 20 Apr 2012 15:03:25 +0000

So very true about it "being our only shot". After being learning I had Cushing's and then later learning all about it thanks to Cushing's Help and the support of my fellow "Cushies". My husband and I have often talked about how the doctors will have lots of patients and if they get it wrong and one of us slip through the cracks they have a new patient in the waiting room the next day. Our families are left wondering why we are no longer here.

The value of knowing about what you have enables you to understand the process, communicate more effectively, participate with knowledge, ask questions, select options for care that are right for you, helps you to explain the condition to those you love or care about and it gives you some small (very small) sense of control over your life instead of being completely overpowered by the illness (any illness).

As always thanks Mary O for giving all of us so much!

Comment on Day Three, Cushing’s Awareness Challenge by CushingsHelp

CushingsHelp — Wed, 18 Apr 2012 01:43:37 +0000

From Facebook:

From Carolyn: Your story is an inspiration. Thanks for sharing. Thanks for the hard work you put into your website.

Comment on Day Three, Cushing’s Awareness Challenge by CushingsHelp

CushingsHelp — Wed, 18 Apr 2012 01:43:07 +0000

From Facebook:

From Heidi: I was that perfect patient too, but I got burned badly by trusting too readily. Now, with PTSD from my experiences on board, I'm battling a decades worth of ever increasing symptoms that could be Cushing's. I've been treated worse now that I've gained a voice, but I refuse to just let myself deteriorate like this to gain favor or make somebody's job easier. Without Cushing's Help and Support I'd never be able to manage!.

Comment on Day Seven, Cushing’s Awareness Challenge by Suziet88

Suziet88 — Sat, 07 Apr 2012 17:49:31 +0000

Now 12 months post pit surgery. An hour is about enough but I do still need an afternoon nap. I have had spells of getting through a whole day without an extra sleep but just recently am needing one every day. Not happy with this, but figure its something I am going to have to live with.