Cushing's Info

I saw this on another site and I stayed up all night making one for Cushies because I thought it was so cool.

This is a toolbar you can install on any browser and it will link to what I think are the most important parts of the Cushing’s websites. If you have other ideas, please let me know.

Right now, this contains (from left to right)

1. The Cushie ribbon icon which takes you to the home page of the newer cushie.info site. Click on the little down arrow to the right of the ribbon and another whole menu appears!
   
   
2. Next to that is a Google search box.
3. An icon for the 911 Adrenal Crisis! page
4. A link to the Cushie Reads book recommendations page on amazon.com
5. The Cushie Calendar
6. All the bios, arranged by diagnosis type
7. Add (or update) your bio
8. Our locations around the world
9. The message boards and chatroom
10. Helpful Doctors list
11. Add (or update) your Helpful Doctor
12. The Support page where people can make donations to help keep all these websites going.
13. A little scrolling message area for Cushing’s news.
14. Cushing’s blogs. I’m still working on this – and I’m not sure how many I can add but for the moment, this blog is included as well as Cushie Bloggers and survive the journey
    
    When any of these update, the icon changes to show that there are new posts.
    
    This area now includes NIH Clinical trials for Cushing’s, pituitary and adrenal. Be the first to know when new trials are listed.
15. The Cushings Help Organization cause on Facebook
16. Links to Staticnrg and Cushings on Twitter. Again, more can be added. If you talk mostly about Cushing’s on Twitter, please let me know.
17. The new CushieWiki. BTW, please feel free to sign up and become a contributor/editor.
18. A radio button – you can play the Cushing’s podcasts right from this toolbar. You can also add stations that you’d like to listen to.
19. You can also add other modules like games, weather, email, hundreds of different things.

Download this toolbar or see a sample.

Denis Costello January 20 at 5:09am

Thanks for being part of the movement to raise awareness for those living with rare disease worldwide.

The 2009 Facebook group is on the move and we have migrated to a Facebook page which allows wider accessibility. So we would encourage to to become a fan of the Rare Disease Day 2010 page and spread the word: http://www.facebook.com/rarediseaseday2010 Join in the discussion and share your events. In the meantime this group will stay in place.

Feb 28 2010 promises to build on the successes of the two previous years of Rare Disease Day.

Rare Diseases as a public health priority is a founding concept of the rare disease patient movement. It will be the over arching theme of every Rare Disease Day Campaign. Each year though we adopt a different focus. In 2010 the communication focus is on "Building bridges between patients and researchers". Therefore the main messages this year will be:

- Rare Disease Research is an important area of research
- Rare Disease Research needs to be better funded
- Patients and Researchers win by working together

Please note that you must be a logged-in member of this site to read these archives.

• December, 2009
• November, 2009
• October, 2009
• September, 2009
• August, 2009
• July, 2009
• June, 2009
• May, 2009
• March, 2009
• February, 2009
• January, 2009

I've started yet another blog to go with this Cushie Info website.

From time to time, I'll be posting topics for discussion/debate there and your comments are welcome.  On the bottom of this post  is a little comment area so you can see the last 5 comments and/or questions.  If by some magic there are a lot of comments, I'll make that more than 5.

Just click on the Jump To link to participate in the debate!  Thanks.

Oh, and by the way - the newest blog is here: http://www.cushie.info/blog/